It's My Turn

[Bluesong]

I know this is mainly a UK sports forum and therefore, have hesitated in making this request. But I also see this as a gathering place of friends who care and are always willing to pray or offer encouraging words if one develops a need. I guess it’s now my turn to call on you.



I have a beautiful 6 year old daughter. She was born perfect, never sick a day in her life until 11 months old when she got the flu. What was different with her was the virus got into her spinal fluid and worked it's way into her brain causing a swelling called encephalitus. Basically, it choked off the nerves that control her physical motor skills. That led to a movement disorder called Dystonia. It left her completely incapacitated. She can't talk, walk, play, hold a toy, she can't even eat. We have to feed her through a feeding tube surgically placed into her abdomen. She has some movements but they are mostly involuntary. Her brain misfires rapidly causing her to stiffen up or arch backward. Sometimes to the point of pain.



Her mind is still there. She’s right where she is suppose to be for her age. She has been tested using cue cards. She has a million dollar smile and uses expressions to communicate. She’s just locked in a body thatnolongerworks.



I haven’t been online much lately because we are currently in Vanderbilt Children’s Hospital in Nashville where she is fighting for her life due to an onset of pneumonia. She has actually stopped breathing twice. It’s been rough but she is showing signs of improvement.



Here’s the good news:



The FDA has approved a medical technique called “Deep Brain Stimulation”. They can actually put sensors in the brain to help it fire the electrical impulses the way it is suppose to. The youngest you can be is 7 years old because of certain brain developments. She will be 7 in February and we will soon be going to Washington for the procedure.



We have actually talked to the doctors doing the surgery. They are having wonderful and dramatic results with ALL patients undergoing the treatment. We were told of a little boy who had dystonia so bad that the only way he could get any type of relief was to lay on his stomach in a fetal position with his butt in the air…..Now he can ride a bicycle. Needless to say, we are excited.


For you, as my friends, I want you to be thankful. Not just for medical achievements but for life and health. If you can go home and have your kids run to you; embrace them. If you can sit down to a meal together, listen to them with your heart. If you can hear them say “I Love You”, cherish that moment. And when you pray, please….remember my little girl.

This is Gracie and me two weeks before she got sick 6 years ago:
http://www.horsethieves.net/drifter/gracie2.jpg?SSImageQuality=Full

[DenCat]

I'm sorry to hear about your daughter. It saddens me every time I hear of a child with a severe illness. Our thoughts and prayers are with you through the holiday season and for a successful outcome of the procedure to come.

[TRexSmarts]

Blue_Knight,

You, your family, and Gracie will be in my prays and thoughts. Good luck with everything. If you need anything, please pm me or e-mail me and I'll see what I can do for you. Sending prays to you now.

TRexSmarts

[capcat]

Blue Knight, please keep us updated on her. I will be very interested to hear about changes after the sensors are implanted. It's been a long road for you and for Gracie and I wishher the best of outcomes.
Keep the faith...and Gracie, youcan do it :).

[PsychoCat]

Blue Knight...thank you for sharing your story with us......it brings tears to my eyes and breaks my heart ...... you and your family will be in ourthoughts and prayers....please keep us posted and let us know if there is anything we can do and update us on how she is doing

[UK78ALUM]

When Jesus had gone indoors, the blind men came to Him, and He asked them, "Do you believe that I am able to do this?"
"Yes, Lord," they replied.

Then He touched their eyes and said, "According to your faith will it be done to you";

Well, I also believe. He will be with her and she will walk again. May God bless your family as you prepare for this healing.

For unto you is born this day in the city of David a Saviour, which is Christ the Lord.

Dave

[blueheretic]

Dude, I'm not a Christian. But I do believe in the power of prayer and I will include you and your beautiful daughter in my prayers.

God Bless.......Dave

[CATHYnKY]

My prayers are with you and that this new medical break through will be what Gracie needs.

[Spanish Moss]

May God bless you Blue_Knight and your beautiful daughter. I have seen the results of prayer and faithsince childhood and I trust Godwill answers the prayers of those who love you and your family in a special way.

We will take this to our Lord and Savior and place our faithin him, knowing he has the power over sickness and death.

[NC Cat]

Wow,thanks for sharing...Gracieis BEAUTIFUL.

She'llbe in myprayers, as will you and your family.Please keep us updated on her progress, and when she's riding thatbike next summer we wantpictures!

[RxRusty]

Blue_Knight,

Major prayers coming your way from Georgia. Remember that Prayer is a powerful thing.

Your daughter is beautiful.

God bless you.

[trublu]

Blue Knight, my heart goes out to you. Gracie is beautiful. I hope and pray that this procedure is a complete success. Vanderbilt is a great children's facility.

I only live a few miles up the road from you. If you ever need anything, please let me know. My email is listed.

My brother is a minister. I want to ask him to have prayer for Gracie at church, if that is OK with you.

[bleedbluelady]

Blue Knight, Prayers going out to you and your beautiful daughter. Please keep us updated.

[Will Lavender]

Thoughts and prayers are with you and your family on this Christmas, Blue_Knight. What a beautiful smile...

[CatKroboth]

Ad me to the list... Prayers for your family. May go bless your whole family.

[BigBlue75]

I echo all the sentiments expressed so far. You, your daughter, and your family will be in my prayers. God bless you.

[UedK]

Very Very Emotional

I pray for beautiful little girl.

[VirginiaBlue]

BK, you're right, this is a sports forum. But you are already finding out - and I'm sure will continue to find out - that this group is more than just a bunch of folks who want to talk about UK! You're right about another thing: my wife and I, who have had 4 kids grow up and move on, have told each other countless times how lucky we have been!

My best to you and your lovely little girl...I will be watching for your reports in Feb.

[WildcatDan]

Why wait? Lets pray right now! If you guys want to pray this prayer with me as you read this then feel free!

Father God we come before you now with thankful hearts. We thank you for every blessing that you give us each day. We thank you for caring enough about us to send your only Son to die in our place. We know that because of that sacrifice that you KNOW how hard it is for us to see our children hurting in any way - you have experienced the worst pain that any parent can feel.

Father, we come before you right now and ask that you be with Gracie and her family. We ask for the healing that you promised to us, Lord. Bring peace to the family and let them know that you are near, Father. Take this sickness from her and make her whole again. I have seen Doctors amazed at a medically inexplicable turn around in someone's condition and what a witness it can be - I ask for that type of healing today, Father! Lord, please heal Gracie and return her to health! We know that you are more powerful than ANY treatment that man can devise and we know that you can do it instantly. Lay your healing hand on Gracie!

We love you, Father, and ask all of these things in your name, Amen!

[WildcatGirl]

You and Gracie are in my prayers. She is adorable and I hope that she has many wonderful experiences to look forward to in life.

[UK78ALUM]

Why wait? Lets pray right now! If you guys want to pray this prayer with me as you read this then feel free!

Father God we come before you now with thankful hearts. We thank you for every blessing that you give us each day. We thank you for caring enough about us to send your only Son to die in our place. We know that because of that sacrifice that you KNOW how hard it is for us to see our children hurting in any way - you have experienced the worst pain that any parent can feel.

Father, we come before you right now and ask that you be with Gracie and her family. We ask for the healing that you promised to us, Lord. Bring peace to the family and let them know that you are near, Father. Take this sickness from her and make her whole again. I have seen Doctors amazed at a medically inexplicable turn around in someone's condition and what a witness it can be - I ask for that type of healing today, Father! Lord, please heal Gracie and return her to health! We know that you are more powerful than ANY treatment that man can devise and we know that you can do it instantly. Lay your healing hand on Gracie!

We love you, Father, and ask all of these things in your name, Amen!



"Why wait?"

Why indeed? And the church said, "Amen and amen!"

[baldcat]

God be with you and your little girl, BK.

[zonetoncatfan]

All of His love and healing on Gracie and His peace to you. You will both be in our prayers and we can't wait to hear the good news of her healing.

[kybuc]

I got choked up just reading that BlueKnight. Your daughter will be in our (She~Cat) prayers as well.

[flacat22]

My thoughts and prayers are with your daughter and the rest of your family. Here's to a FULL and speedy recovery. Where there is a will theres a way. Stay strong for Gracie brother.

[UKSam]

BK - If my family can do anything for you please do not hesitate to ask. We will be praying for your family.

[Bluesong]

I just wanted to thank all of you for your thoughts and prayers. My family has read your responses and we have found comfort in your words. It's great to know there are folks out there that we've never met who sincerely care.

Gracie is showing small signs of improvement. She still has to have assistance in breathing but they say she is getting stronger. I will keep you updated.

[trublu]

Thank you for letting us knowBlueKnight. I pray that she continues to get stronger each day. May God bless this angel on his Son's birthday.

[boomdaddy]

My prayers are with your daughterand your family. I have come close, several times, to losing a child. My family is very fortunate. There is not a parent that wouldn't sacrifice their own welfair, to ensure the good health of their children. May God bless you andyour family.

[catfeverintennessee]

Prayers going out to you and your family. Prayer is a Powerful thing and so much more so when groups are praying together. Find comfort, strength and hopein knowing that all the folks on here are praying for your family and Gracie.

Children are one of God's blessings. I do not have any of my own but that was God's plan for me. But God chose special parents for Gracie in you.

God bless you and your family and give you continued strength in caring for His special blessing. And God bless Gracie, the doctors and the medicine to heal her. Amen

[WildcatGirl]

I'm glad to hear that there is some improvement. Gracie, you and your family continue in my prayers, and in those of my morning prayer circle at work.

[UK Chic]

Blue_Knight,

My prayers are with you, Gracie and your family. Tears are in my eyes from reading this post but so very glad you decided to share with us. Life is so very precious and anything that we, as friends, can do to help a brother out, we should.

Please keep us posted on the progress - Carrie

[Bluesong]

Just a quick update. Gracie was taken off the ventilator today. All vitals are stable and she is smiling again.

Your thoughts and prayers have meant alot to her. I have read them to her and called you all by name. Including all the PMs I received. I wish you could see the look in her eyes. She knows lots of folks are pulling for her and seems to draw strength from it.

I started to take her picture to post here but she let me know she didn't want to. I couldn't get her to smile for the camera. I asked her when we get her fixed up and looking pretty and she's not in the hospital if she would like to send the Nation an updated picture and there was the positive affirmation, an immediate smile.

[baldcat]

Excellent news BK. :thumbup

Blue_Knight wrote:
Just a quick update. Gracie was taken off the ventilator today. All vitals are stable and she is smiling again.

Your thoughts and prayers have meant alot to her. I have read them to her and called you all by name. Including all the PMs I received. I wish you could see the look in her eyes. She knows lots of folks are pulling for her and seems to draw strength from it.

I started to take her picture to post here but she let me know she didn't want to. I couldn't get her to smile for the camera. I asked her when we get her fixed up and looking pretty and she's not in the hospital if she would like to send the Nation an updated picture and there was the positive affirmation, an immediate smile.

[capcat]

Blue_Knight wrote: Just a quick update. Gracie was taken off the ventilator today. All vitals are stable and she is smiling again.

Your thoughts and prayers have meant alot to her. I have read them to her and called you all by name. Including all the PMs I received. I wish you could see the look in her eyes. She knows lots of folks are pulling for her and seems to draw strength from it.

I started to take her picture to post here but she let me know she didn't want to. I couldn't get her to smile for the camera. I asked her when we get her fixed up and looking pretty and she's not in the hospital if she would like to send the Nation an updated picture and there was the positive affirmation, an immediate smile.
Tell her we're very happy to hear this andare thinking about her. Keep it up, sweet girl :)!

[trublu]

That is the best news that I've heard in a long time.:)

[WildcatDan]

Woo hoo! Glad to hear she is doing better and I am still praying that she is completely healed!

[NashvilleUK]

<---I get my church here in Nashville (Mt. Juliet) to pray for her as well.

Are you still at Vandy? If so, PM me and I'll see what I can do for ya.

[TRexSmarts]

Blue_Knight, I'm glad to hear the good news on Gracie. Keep updating us and I'll keep praying for the family and her. GET WELL SOON GRACIE!

TRexSmarts

[bleedblue79]

I've been away from the board and only now got to read the thread. I am so glad to hear that she is doing better and will addmy prayers for a full recovery.

[WildcatRick]

BK, I too am just seeing this news and I am thrilled to hear Gracie is doing better!! Tell her that her Big Blue Family is still praying for her and she will be in our thoughts. We look forward to seeing the new picture.

[Calsegs]

Blue Knight I 've just read this thread for the first time. I will pray for your family, especially Gracie, from now on . I believe in science, and in miracles.

[WildcatGirl]

Awesome news!!! I'm so happy to hear that Gracie is doing well. I will continue to pray for her and have asked others to do so also.

[WildcatGirl]

We would love an update if you have time to post one. Gracie and your family are still in my prayers.

[Caveman Catfan]

BK, Gracie and your family are in my prayers. May God's healing hand be with Gracie and may he guide her doctors to success in treating her illness.

[HOMEYCAT]

God Bless Gracie and Family and God bless us all.

[Calsegs]

Amen.

[PsychoCat]

We continue to pray for you and your family..... hope she is still doing better......update us when you can

[freethrow]

BK, I had never opened this thread. Having done so today I am very sorry I didn't. I saw that subject line but being so busy around the holidays I just didn't open it. I had no idea of the importance within.

BK, I can't even imagine how deeply painful this must be for you. Having a beautiful and healthy child fall prey to a condition like this has to cause pain for you and your family that comes back far too often and a pain that in many ways never goes away. I pray that things get much better for Gracie as soon as possible. She is a beautiful little girl.

I am familiar with both Dystonia and DBS surgery. I have a friend in PA that has had one form of Dystonia for many years. She recently had the DBS surgery herself. No amazing results yet, but it can take a bit of time before that to happen as the doctors adjust for the individual. She does see improvement though. Hers is Cervical Dystonia which involves involuntary spasms in the neck and shoulder causing the head to pull to one side and then just stay there and a few other symptoms.

I do not know all that much about DBS surgery but it sounds as if your daughters condition is one that would benefit from its purpose. I certainly pray that if she does have it one day that it is a complete success. I also hope that there are even better options for her to come along very soon as well.

Wildcat Hugs and Prayers for Gracie, you and your family from all of us.

[CATHYnKY]

Great news. You, your family AND Gracie are in my thoughts. I have been blessed with 2 healthy children and now 2 healthy grandchildren. I never take good health for granted. Thank you so much for the update and I will check here often for good updates :thumbup

[UK 4 Life]

You and your wonderful daughter are in our prayers and please let us know if your family needs anything at all. Please keep us updated. God Bless you

[Bluesong]

Hello everyone,

Thanks for all the new responses. I read them to Gracie when they are posted.

Sorry to take so long to get back. The last couple weeks have been quite a roller coaster ride. Gracie got out of the Critical Care Unit two days after she was taken off the respirator. She still required oxygen but at least she was out of the woods.

The next day, a newbie respiratory therapist was trying to suction out her throat and caused her to aspirate. It went from bad to worse and soon became aSTAT situation. Within seconds, there was a room full folks trying to revive her. She did pull through but it cost us four more days in CCU.

Anyway, she is doing fine now and brought her home on friday. We piled up on the couch yesterday to watch the game with Alabama. She loves for me to explain the game to her. She wants me to tell you guys that if you have any prayers left, you might want to send one up for our Wildcats. She doesn’t think they have a prayer this year. “OUCH”.

Hey Freethrow. I haven’t heard of “Cervical Dystonia.” I know there are many types. They are calling Gracie’s “Secondary Dystonia”. The damage is in the basil ganglia part of the brain. You are right. It does take awhile to get everything set just right. They told us that we could possibly be there as long as three months. I have been to Pittsburgh with Gracie. There is a world reknowned movement disorder specialist there named Leland Albright. He implanted a baclofen pump in her abdomen that helped a lot and made it a lot less painful. If you or your friend would like more info, shoot me a PM and I will be glad to give you the details.

Thanks again, Wildcat Nation. You have played an important part. I will update you on the latest happenings.

[WildcatGirl]

I'm so excited for Gracie to be back home. That is wonderful news, we are still praying for her regularly at morning prayer in my office. My hats off to the doctor who was able to implant that pump in a body so small, that must have been quite a task...we use those alot where I work so I'm somewhat familiar with what is involved there. I'm glad it is helping her. We will continue to pray for her as you enter the next phase of her treatment. Give Gracie a hug from me.

[capcat]

I'm glad she's home and doing better. Did she develop aspiration pneumonia from that incident? I'm not sure how that could be avoided with aspiration...we went through something similar with my youngest child as a newborn. Instead of a pediatric lung specialist as promised, the hospital sent someone from the nursery with a bulb syringe. That costhera week in intensive care. I'm sorry that happened to Gracie, butpleased to hear thatshe recovered so quickly.

[bleedbluelady]

Blue_Knight, Thanks for the update. It is good to hear Gracie is at home. We will continue you all in our prayers.

[TRexSmarts]

Thanks Blue_knight for the update! I'll continue praying for her to continue getting better. Hang in there Gracie!

TRexSmarts

[Calsegs]

Gracie , you and your family are in my thoughts and prayers everyday. I pray for a complete healing for her. You are all my heroes.

[4thecards]

I hope you guys don't mind me posting here, but I just wanted to say that I will pray for your daughter also. I have a 17 month old little girl who was born with a heart defect and had open heart surgery back in June and let me tell you, prayer does work! It's horrible when you have a sick baby and there's nothing you can do for them. You feel so helpless, but I know God was there for me and my wife and by his grace my baby girl is doing great now. Anyway, not trying to steal your thunder Blue knight, I just wanted you to know that I have an idea what you are going through and I will definitely pray for that pretty little girl of yours. God Bless!

[Bluesong]

Capcat, yes, that is what happened.

4thecards, you are always welcome here. Thanks for sharing your story.

It is tough. I guess we just learn to play the hand we are dealt and never give up. I do thank God for giving her to me to take care of. Gracie has taught me many things through the years. She has given me the opportunity to discover the depth of my own character, my commitment, and my abilities.She drives mefurther than I would ever go on my own, working harder,looking foranswers to many questions. Some of which, there are no answers.

She has taught me about how precious this life really is. About not taking things for granted. She has taught me to have hope and faith and reminds me to pray. I don't worry so much about my own needs anymore. Through Gracie, I have learned about giving and unconditional love.

[she~cat]

Blue_Knight wrote: Capcat, yes, that is what happened.

4thecards, you are always welcome here. Thanks for sharing your story.

It is tough. I guess we just learn to play the hand we are dealt and never give up. I do thank God for giving her to me to take care of. Gracie has taught me many things through the years. She has given me the opportunity to discover the depth of my own character, my commitment, and my abilities.She drives mefurther than I would ever go on my own, working harder,looking foranswers to many questions. Some of which, there are no answers.

She has taught me about how precious this life really is. About not taking things for granted. She has taught me to have hope and faith and reminds me to pray. I don't worry so much about my own needs anymore. Through Gracie, I have learned about giving and unconditional love.
God bless you Bk...still saying prayers for your family...and you as well 4thecards....

[trublu]

BlueKnight, that's great news. Bless her heart.

Please tell Gracie thatthe Wildcats may not have a prayer,but she sure does.:)

[fanaticfan]

Blue Knight

I haven't been on here much lately and just read your post about your daughter. Gracie will be a permanent fixture in my prayers. My stepdaughter, who I raised from the age of eight also has dystonia. She was diagnosed at the age of 8 years after many visits to doctors who misdiagnosed her as MD,

MS or cerebal palsy. Hers started in her left foot and soon her entire left side was involved. She had no balance and would fall out of chairs.I will not go into detail here, but she stayed on her knees and chest folded up most of her middle school years. She went to Emory university to a great, great doctor, Dr Mahlon Delong, who was at the time the scientific research Dr for the dystonia foundation. When she was 15 she had brain surgery. She is now 21 and is not perfect but much better. My father - in - law also has a form of this called dysphonia which effects his vocal chords. I would love to chat with you sometime about this. I spent a lot of time researching this disease. My prayers are with Gracie and you and your wife.

[WildcatGirl]

We would love an update on Gracie...how is she doing? She is still in my prayers regularly.

[Bluesong]

Here I am. Thanks for asking about her. Hopefully, a date for her surgerywill be set real soon. Until then,Iwill go ahead and posta few pictures of her.

I don't know where she gets these smiles but she knows how to get anything she wants from ol' Dad with them. She's actually getting a breathing treatment in this pic. The sock on her hand is there to keep her from getting her fingers tangled up in her hair and accidentally pulling it.

http://www.horsethieves.net/drifter/Gracie01.jpg?SSImageQuality=Full

[Bluesong]

Here she is helping me do some painting.

http://www.horsethieves.net/drifter/Gracie02.jpg

[Bluesong]

Trick or Treat. The prettiest little vampire I've ever seen. :)

http://www.horsethieves.net/drifter/Gracie04.jpg

[Bluesong]

Here's a pic of all four of my kids. The bottom one looks the most like me.

http://www.horsethieves.net/drifter/Gracie03.jpg

[TRexSmarts]

She is so adorable!!!! Thanks for the update and I'll continue praying and keeping her in my thoughts!

TRexSmarts

[baldcat]

You've got a little angel there, BK.

Best wishes on her recovery.

[WildcatGirl]

Thanks for the update B_K She is precious....I can see why that smile get's you every time...How could it not??? She could get anything she wanted from me with that smile and I haven't even met her yet! You're boys are darling too. Your family continues in my prayers daily.

[zonetoncatfan]

Was just thinking of you guys yesterday, thanks for the update. She is totally gorgeous (as well as her brothers) and that smile is just too much. Remaining in our prayers for a glorious recovery. Take care! :)

[PsychoCat]

You have a great looking family and a very special little girl .....she is beautiful and can set the world on fire with that smile....thank you for sharingher with us.....she has touched the hearts of everyoneat WCN and we will continue to keep you and your family in our thoughts and prayers

[capcat]

Gracie'sbeautiful, Blue Knight. She has Jackie O. gorgeous eyes,with the addition oflong curly lashes.

[WildcatDan]

Wow! What a cutie! Thanks for the update!

[Calsegs]

Beautiful children BK, all four of them . You are a rich man.

[she~cat]

you have a beautiful family ...thank you for sharing:thumbup

[bigjeep]

Blue Knight, this has been the most touching 10 minutes I`ve spent in ages. What a precious little girl. If there is a need that I can fill for you, aside from the prayers you`ll get, please, please, let me know...

[Bluesong]

UPDATE:

Hello all. We still don't have a date for her surgery. We may end up in Atlanta instead of D.C. Also, we have recently signed Gracie up for that new reality show called "Miracle Workers". We may wait just a little longer to see if they respond. According to their web site, her condition is one that they are looking for.

Some of the moderators and members of this site recentlyshowered her with several gifts, UK related merchandise, that she absolutely loves. I know I have thanked you all privately but I also wanted to thank you publicly. It has meant so much to her and our family knowing you all are there and care so much about her.

I also want to thank the UK Cheerleader Squad for the autographed picture. She really lit up when she saw that and smiles whenever she sees you on TV.

And last but not least, thank you, Eric, aka BigBlueAngus and all the folks at "Logos Unlimited" for the t shirts you made for her. On one of them, they put Dad's "Feeding Time" logo and the other one has her name on the front along with #1 Wildcat Fan. On the back, they put the number 44. Eric saidthey picked that numberbecause Chuck Hayes was such a fighter. AWESOME, we love it.

Here's a couple pictures of her in her new UK Cheerleaders uniform. She has lost her two front teeth and is trying to hide it with her tongue. LOL.
http://www.horsethieves.net/drifter/cl02.jpg

[Bluesong]

Ok, Gracie....let's see those gums:
http://www.horsethieves.net/drifter/cl01.jpg

[VIIBanners]

WOW! Talk about some cool and caring people! I wish you and Gracie luck with the surgery and the show... I don't like reality TV but I would TAPE that show for sure! Have good one, man. I've got my "Feeding Time" shirt on right now, I'll have to get that autographed sometime if we ever meet up.

[Bluesong]

Here she is watching the Cats play with her new #44t shirt on. Shhhh, she's really into it:
http://www.horsethieves.net/drifter/cl03.jpg

[PsychoCat]

Thank you Blue Knight for sharing the pictures she looks so adorable in her outfit :)she is a special little wildcatfan and has touched all our hearts and also those of the UK Cheerleaders.

While I havent gotten a chance to see the show Ive heard about it and know it is done by the producers of Extreme home makeovers......and they do amazing things and really do perform miracles.....I was wondering if WCN members could help out by writing to the show also and requesting that we would like Gracie to be accepted on it? ....there is strength and numbers and I would be happy to help as I know many others would also

*note page 4 has more pictures of gracie in her outfit

[capcat]

She's gorgeous as ever.Thanks for posting pics of that sweet girl.

[bleedbluelady]

I don't know how I missed the pictures and update in February. You have a beautiful family and will stay in our prayers.

[Bluesong]

PsychoCat wrote: I was wondering if WCN members could help out by writing to the show also and requesting that we would like Gracie to be accepted on it? ....there is strength and numbers and I would be happy to help as I know many others would also


That would be wonderful!! I am in awe of the responses this thread has generated. You are right. There is strength in numbers. It may just give her the edge she needs. Here is the web site:http://www.miracleworkerstv.com/

Psychocat, I have PMed you Gracie's personal info needed to apply. You have my permission to pass that on to anyone that would like to help out. Or they can contact me directly.

The only thing left to say is...GO CATS...BEAT UAB!!!

[capcat]

Blue_Knight wrote: PsychoCat wrote: I was wondering if WCN members could help out by writing to the show also and requesting that we would like Gracie to be accepted on it? ....there is strength and numbers and I would be happy to help as I know many others would also


That would be wonderful!! I am in awe of the responses this thread has generated. You are right. There is strength in numbers. It may just give her the edge she needs. Here is the web site:http://www.miracleworkerstv.com/

Psychocat, I have PMed you Gracie's personal info needed to apply. You have my permission to pass that on to anyone that would like to help out. Or they can contact me directly.

Thanks for providing the link, Blue Knight. I would also like to submit a request for her and will ask Kristen for the information.I'm wondering...doesMiracle Workers have resources that help withliving expenses for the familyduring hospital stays? That wasn't mentioned on their website, but it would bewonderful if they did. I'm assuming it would still be done out of state and remember yousaid it would be several weeks before she could come home afterwards.

[Bluesong]

capcat wrote: I'm wondering...doesMiracle Workers have resources that help withliving expenses for the familyduring hospital stays? That wasn't mentioned on their website, but it would bewonderful if they did. I'm assuming it would still be done out of state and remember yousaid it would be several weeks before she could come home afterwards.
Good question. I know that other reality shows do that and I've been told this one does too. But not by an official of the program. That's one of the reasons we are trying this route. Here's to hoping.

[Calsegs]

I have sent email to the Miracle Workers link posted.

Just hit the Apply button , Blue Knight can give you the infor regarding phone #, and email address. Or PM me or PsychoCat.

I said if MW selects Gracie for the Series, the whole state of Kentucky will be watching!:cool:

[WildcatGirl]

She looks lovely in her cheerleading uniform...Thank you so much for sharing the pictures...Ciera and I can't wait to write to the show too...we'll get the info from Kristen. She is still in my prayers...as well as alot of other people here in Huntsville who have added her to their prayer list at my request.

[NC Cat]

Blue_Knight wrote: PsychoCat wrote: I was wondering if WCN members could help out by writing to the show also and requesting that we would like Gracie to be accepted on it? ....there is strength and numbers and I would be happy to help as I know many others would also

That would be wonderful!! I am in awe of the responses this thread has generated. You are right. There is strength in numbers. It may just give her the edge she needs. Here is the web site:http://www.miracleworkerstv.com/

Psychocat, I have PMed you Gracie's personal info needed to apply. You have my permission to pass that on to anyone that would like to help out. Or they can contact me directly.

The only thing left to say is...GO CATS...BEAT UAB!!!

Thanks so much for the new pictures of Gracie. She looks GREAT in her cheerleader outfit and I love the shot of her watching the game! I'll send a letter to Miracle Workers today and I encourage everyone who reads this thread to do the same. Wouldn't it be great if WCN couldhelp get Gracie selected for the show?It's not often we get a chance to help change a life. This might beone of those times.Let's go WCN!!!

[Missy]

Beautiful little girl you have there blue knight and hope surgery goes well and prayers go out to you .I know it been along time but no acess to a computer . keep us updated .

[KY Blue in Carolina]

NC Cat wrote: I'll send a letter to Miracle Workers today and I encourage everyone who reads this thread to do the same. Wouldn't it be great if WCN couldhelp get Gracie selected for the show?It's not often we get a chance to help change a life. This might beone of those times.Let's go WCN!!!


I've sent mine.....

It just takes a minute, and could be a huge help to Blue_Knight and Gracie!

Let's help out our extended WCN family!

[fanaticfan]

I will do everything that I am capable of doing to help this beautiful family and this adorable child.

[PsychoCat]

Blue_Knight wrote: UPDATE:

Hello all. We still don't have a date for her surgery. We may end up in Atlanta instead of D.C. Also, we have recently signed Gracie up for that new reality show called "Miracle Workers". We may wait just a little longer to see if they respond. According to their web site, her condition is one that they are looking for.

Some of the moderators and members of this site recentlyshowered her with several gifts, UK related merchandise, that she absolutely loves. I know I have thanked you all privately but I also wanted to thank you publicly. It has meant so much to her and our family knowing you all are there and care so much about her.

I also want to thank the UK Cheerleader Squad for the autographed picture. She really lit up when she saw that and smiles whenever she sees you on TV.

And last but not least, thank you, Eric, aka BigBlueAngus and all the folks at "Logos Unlimited" for the t shirts you made for her. On one of them, they put Dad's "Feeding Time" logo and the other one has her name on the front along with #1 Wildcat Fan. On the back, they put the number 44. Eric saidthey picked that numberbecause Chuck Hayes was such a fighter. AWESOME, we love it.

Here's a couple pictures of her in her new UK Cheerleaders uniform. She has lost her two front teeth and is trying to hide it with her tongue. LOL.
http://www.horsethieves.net/drifter/cl02.jpg


Btt

*Thank you to all the WCN members who have helped outby sending anonline application for Gracie to be part of Miracle Workers so far, it only takes a minute .....please PM for the information

[HOMEYCAT]

I sent my submission. And, may grace be with Gracie.....

[Bluesong]

Hello everyone. Here is the latest update. We never heard from Miracle Workers but that is ok. They are doing alot of great things. Thanks again to everyone who took the time to write to them.

Since my last post, we have been in contact with doctors in California, Atlanta, New York and Washington DC. It seems the best is still in DC. The doctor there has called us on several occasions and asked for a documented video. We sent that tohis teamover a month ago. He called today with positive news. The team feels confident they can help her. They want us there in two weeks on 5/30/06 for the preliminaries.

I have had a couple of PMs from some of you that knows someone or has someone in the family with dystonia. I wanted to go ahead and list this web site from the "Washington Brain and Spine Institute" ofDoctor Lavine with his picture and medical background. He said he has done hundreds of these procedures and no less than one a week. He gets results even from secondary dystonia. http://www.brainsurgery.com/pubs/24_61_532.cfm

Our family is so emotional and excited right now. Please, continue to remember Gracie.

(EDIT: Date Change)

[Will Lavender]

That is awesome news, BK.

God be with you, with your family, and especially with Gracie.

[flacat22]

Great news BK!!!!! We're all pulling for Gracie and the rest of your family!

[UK78ALUM]

2 Corinthians 1:10-11 (New International Version)

10 He has delivered us from such a deadly peril, and he will deliver us. On him we have set our hope that he will continue to deliver us, 11 as you help us by your prayers. Then many will give thanks on our behalf for the gracious favor granted us in answer to the prayers of many.

Indeed, many are giving thanks right now, I promise.

Dave

[bleedbluelady]

That is wonderful, wonderful news! It brought true joy to my heart, I can't imagine how excited you and your family are.

[ukbob]

AWESOME news for sure.

God bless your entire family. I just know HE will. :thumbup

[capcat]

Blue_Knight wrote: Our family is so emotional and excited right now. Please, continue to remember Gracie.
And rightly so, this is so encouraging! Praying for her...please keep us updated.

[bigjeep]

I`m sitting here grinning from ear to ear...:thumbup

[WildcatDan]

Whoo hoo! I got chills when I read about you all getting in to see the doc in DC! Hopefully he will be able to help!

My family continues to pray for Gracie and my mom (who is a GREAT prayer warrior) even asked me last weekend about "the little girl on your website" and told me she had been praying for her!

I firmly believe that God DOES hear our prayers and that this doctor very well may be the answer that He is giving in response to all of those prayers!

[Littlemeyer]

This is FANTASTIC news, Blue Knight! My family and I will continue to keep you and yours in our thoughts and prayers...

[PsychoCat]

Gracie and your familywill continue to be in our thoughts and prayers in the weeks and months to come ....thanks so much for sharing with us

[UK Chic]

My eyes are filling up with tears as I read this great news. Prayer does work! I will keep Gracie and you all in my prayers.

WCN is much more than a UK website to me.....more like my extended family and this is what family does! Our prayers and positive thoughts will be with you through all of this.

Carrie

[CATHYnKY]

HooRay for Gracie and HooRay for your family. You will be in my thoughts and prayers. Looking forward to more positive updates. :)

[Calsegs]

Hallelujah. I will be keeping you all in my prayers especially 5/23. My hopes are high for Gracie.

[freethrow]

Very Very good news BK. You, Gracie and your family are in all our hearts with our very best wishes for you.

[KY Blue in Carolina]

Fabulous news!

Gracie, her new caregivers in DC, and your entire family remain in our thoughts and prayers.

[trublu]

That is the best news that I've heard in a long time.:)
God bless her and your family.

[RxRusty]

Blue Knight... Thanks so much for the update. Great news!!! You'll still be receiving prayers from Georgia. Gracie looks awesome in her UK outfit!

Take care.

[4thecards]

Blueknight, you have a beautiful little girl there. My heart goes out to you and your family. I'm so glad you got good news, I will continue to keep your family in my thoughts and prayers.

I know this may sound sappy, but children are the most precious thing in this world. I honestly don't remember how I got by before my kids came along.

God Bless, I hope everything turns out well for you and your beautiful baby girl.

[she~cat]

still keeping you in our thoughts and prayers!:thumbup

[NC Cat]

To Blue Knight: Thanks for the terrific news. Kristen and I are both so excited to hear you've got a date scheduled in DC. That is just great news!

To Gracie: YOU GO GIRL!!!

[WildcatGirl]

Gracie still continues in our prayers. I'm glad that she is going to DC and I pray that God guides the physicians hands to provide healing for her. Iwould love to get to meet Gracie and the rest of your lovely family one day when we are in the Franklin area.

[POEKLM]

I must have been in a cave. I haven't seen this thread before. Your first post really hit home to me. When I am starting to feel a little sorry for myself I remember that my children are healthy. Their arguments and bickering sound better than a breathing machine keeping them alive. They can take care of themselves. Thanks for reminding us to be thankful.

I will join our WCN family in prayer also.

[NashvilleUK]

Fantastic news!!!!!!!

[fanaticfan]

I am so happy for you and your family.I do believe in God and I know that he works miracles. I will keep you in my prayers as always and look forward to an update!

Please let your wildcat nation family know if there is anyway that we may help you!

[catfeverintennessee]

Wonderful news!! So happy for you all. Still keeping you in thoughts and prayers, Thanks for keeping us up to date.

[katfever]

I wishyour beautiful girl and your family the best and will keep them in my prayers. What heart wrenching circumstances.

[Bluesong]

Wow! I can't get over the responses from you guys. We've got our own "Miracle Workers" going here. :)

I do want to make a correction. I said it would be 2 weeks and then dated it for one week. DUH....anyway, our first preliminary visit is on the 30th not the 23rd. That is also when they will schedule the actual surgery.

[Bluesong]

I just gotta share this with you guys. I had no idea how we were gonna get Gracie to DC. It's hard for her to ride in a car seat for extended periods of time. A 10 hour road trip would be a nightmare.

"Angel Flights" turned us down because she wasn't able to walk off the plane on her own.A coupleof the airlines have a special package for situations like ours but you have to give them a two week notice. No exceptions.We missed that by one day.

No way were we gonna change our appointment. We have waited too long. We made the decision we were going and the "how" would come.

Two days ago, we got a call from someone who offered a private jet. I wish I could tell you who it is but they wish to remain anonymous. They are gonna fly us there and wait for Gracie to make her office visit and then fly us back home. Yes, we are shouting some victory cries around here.

Thank you all for your prayers. Prayer does work. I'm reminded of something a wise man once said: "Fear knocks at the door. Faith answered. There was no one there."

[UK Chic]

This is wonderful news! Bless that person that offered you the jet!!

[zonetoncatfan]

Praise the Lord!! Can't wait to hear how wonderfully it all goes. Lifting our little Wildcat Gracie up to Him in prayer. Have a safe and healing trip.

[trublu]

BlueKnight, that is wonderful news. Angels come in all shapes and sizes.:)

[Calsegs]

Wonderful news, BK. Praise God.

[WildcatGirl]

Fantastic News BK!!! Give that anonymous person a hug from me. It's amazing the ways in which God answers prayers.

[fanaticfan]

As Gracie's appointment is tommorrow, let's all remember her and her family in our prayers. We will anxiously await good news upon your return home.

[bigjeep]

fanaticfan wrote: As Gracie's appointment is tommorrow, let's all remember her and her family in our prayers. We will anxiously await good news upon your return home.
Amen...:thumbup

[capcat]

Thinking aboutyou alltoday, Blue_Knight. :thumbup

[bleedbluelady]

capcat wrote: Thinking aboutyou alltoday, Blue_Knight. :thumbup
Ditto.

[PsychoCat]

We've had you and your family in our thoughts today and praying everything goes well

[WildcatGirl]

I'm praying to hear some good news very soon. ((((((HUGS)))))) to you Gracie!

[Calsegs]

...eagerly awaiting an update , BK, my prayers for Gracie and her family continue.

[Bluesong]

Great news!!! We were told Gracie is a perfect candidate for Deep Brain Stimulation.They were very impressed with her MRI and how small the actual damage was.

They told us she has a 90% chance of regaining control of all her mid section. No more painful arching and twisting of her back and neck. That would be immediate results. She should be able to learn to use her hands again. They couldn't promise she would ever walkor talk but with lots of rehabilitation, it's definately possible.We were shownvideos of some of their patients that did.

I wish I could give you an actual surgery date but there are still a few details that need to be worked out. As soon as we have that established, I will let you know.

Thanks again, Wildcat Nation, for remembering her. You guys are an important part of her life. I could tell she was excited for me to give you this news.

[Calsegs]

FANTASTIC!!!:D I am excited at the thought of so much postive change for Gracie. She is a true champion .

[capcat]

Blue_Knight wrote: They were very impressed with her MRI and how small the actual damage was.

Wonderful! Here's to hoping foran outcomethat far exceeds your highest expectations. Happens all the time, and that girl is determined. :cool: Gracie, we'll be with you every step of the way.

[KY Blue in Carolina]

Now that brings a smile to my face and a tear to my eye!

Wonderful news - please do keep us posted.

Thoughts and prayers abound!

[fanaticfan]

Great news, Blue_Knight! When Amber had her surgery, the first time we saw her, she was a calm as could be. If there is anything that we can do, please do not hesitate to ask! Good things happen to good people!

[zonetoncatfan]

Well, that is just absolutely super!! So excited that 'ourgirl' is getting so much positive news. Still in our prayers and hearts every day....hang in there, Gracie!!!

[trublu]

Bless her heart. Blueknight, please keep us posted.

[WildcatDan]

Sounds fantastic Bruce! We love the updates around here so let us know!

[NC Cat]

Wow, that's the best news I've heard in a long, long time. Go Gracie Go!!!!!:thumbup

[CATHYnKY]

Good for Gracie and good for her parents. She will do great. Be sure and tell her we are all rooting for her. Thanks for taking the time to update us.

[WildcatGirl]

That's awesome news Bruce...I will continue to pray for you and Gracie!

[WildcatGirl]

Any recent updates on Gracie?

[KyWildcats7]

Hey Blue Knight. I just now saw this thread. You have a beautiful daughter there and I hope all is going better for her. Prayers are withGracie and your wholefamily.

[Bluesong]

I wish I had some good news for you guys. :shrug:Maybe soon.

I have to admit, sometimes I struggle with how much info I should put on this site. Or even how many detailsyou guys really want to know. On my side of this thread, let's just say the challenges are great right now. We are fighting hard for Gracie and will never give up. EVER! And I know you won't either. Thanks for remembering her.

[Calsegs]

BK we think of her daily, maybe more than that. She is our small warrior, and our thoughts/prayers are with all of you all.

You post whatever helps.

[fanaticfan]

You know that my prayers are with you and your family. I know that you must struggle sometimes, just remember that's what friends are for. We will not give up either.

[WildcatGirl]

I'm with Carmen...you post what you would like...even if we hear nothing from you for a while Gracie and your family are always in our prayers.

[Bluesong]

First, let me apologize for leaving you guys hanging like that. I was having a bad day. The problem was concerning Gracie's insurance. At the time, it didn't look like it was gonna be any good. The cost was astronomical to say the least.

I won't go into all the details here, but alot of good folks went to bat for Gracie. Our state senator, Richie Sanders got involved and got the job done. If anyone would like to drop him a note of thanks, his email is richie.sanders@lrc.ky.gov (mailto:richie.sanders@lrc.ky.gov). Also, Senator Brett Guthrie has been instrumental in making sure Gracie is taken care of.

It is now confirmed, her actual surgery date is scheduled just two weeks away on July 28th. I told her to smile big for WCN and give you guys the good news...

http://www.horsethieves.net/drifter/Gracie06.jpg?SSImageQuality=Full

[Calsegs]

That's an answer to our prayers, BK.
Cry for happy , etc. over here.

I will be sure to shoot Sanders an email telling him I'm not a constituent but his good work is appreciated in CA.

You all will obviously be in my thoughts and prayers continually.

Very cute photo btw. pretty in pink, Gracie.

[VIIBanners]

Wow man, we'll be pulling for Gracie and your family.

[POEKLM]

VIIBanners wrote: Wow man, we'll be pulling for Gracie and your family.

Amen and amen!!!

[capcat]

:) Thanks for the news, Bruce. And for the smile, Gracie. :cool:

Blue_Knight wrote:
http://www.horsethieves.net/drifter/Gracie06.jpg?SSImageQuality=Full

[trublu]

Bruce, thank you for the update. Gracie will definitely be in my thoughts and prayers.
These senators help me have just a little more faith in our system.:)

[zonetoncatfan]

Sounds like things are moving forward, can't wait to hear happy news after the surgery.

And that smile he hers.....is it just me, or does it get prettier with every picture you send?? Lots of love and prayers your way, Gracie!!!

[KY Blue in Carolina]

Fantastic!

Thanks for keeping us advised. What a beautiful smile!

[WildcatGirl]

Great news Bruce...I'm thrilled that the insurance stuff worked out and I will be praying for a successful surgery for Gracie.

[fanaticfan]

That is wonderful news! Gracie, you, your wife and the boys will be in our thoughts. God has a way of taking of his own. My family's love and prayerswill certainly be with you and be thinking of you on July 28th.

[Bluesong]

Just a quick update. Surgery starts at 7:00 am on the 28th. It's suppose to be complete by 2:00 pm. We are not gonna be there as long as we first expected. It's funny how you get completely different information from different doctors.

We were told yesterday that she would only be in the hospital for a couple of days. They will still do some fine tuning on a daily basis for about another week and then we come home. There will still be follow up visits every two or three months for the next year.

It's almost here!! Wow, the anticipation...

[Calsegs]

Pretty doggone exciting!!!!

[fanaticfan]

I know it will be hard to contain your excitment and I am sure there will be the nerves working on you. Take it from one who has been there, that will be the longest 7 hours of your life. Amber came home after 3 days. Just know that she will be surrounded with BIG BLUE LOVE.

[bleedbluelady]

Bruce, thanks for the update. There sure are a lot of people pulling for her. :cool:

[WildcatGirl]

(((((HUGS)))))) to you, Gracie and your entire family Bruce. All of you will be in my prayers

[fanaticfan]

Let's all remember Blue Knight andGracie as I am sure that they are traveling to DC for her surgery on the 28th.

[WildcatGirl]

Our prayers are with you.

[VIIBanners]

Good luck.... good buddy.

[WildcatDan]

Glad to hear it is finally going to happen! I will be praying for her and the doctors!

[PsychoCat]

All of you are in our continued thoughts and prayers as you go through this week

[Calsegs]

Amen , amen , amen.

[capcat]

Thinking of you all today, Bruce :thumbup

[Bluesong]

Thank you for remembering my little girl. Right now, as I type, she is in surgery. I was thinking about you guys and came to the hospital library where they have computer access for patients and families.

Graciewas actually admitted yesterday for preparation.She has been so excited. She knows exactly what is going on. It was hard for her to sleep last night for being anxious, excited, etc. I was impressed that she didn't even cry when they gave her the IV. I 'm sometimes in awe of her courage. The only time she cried was when they took her into the surgery room and Mom and Dad couldn't go with her. One of the team members came back out and told us that by the time they were in the room, she was smiling and winning hearts again.

I will write more later on.

[zonetoncatfan]

God bless you all, Bruce. In my prayers ALL day!! :)

[PsychoCat]

Gracie and your family are in our hearts and prayers today especially as shegoes through surgery :)

[capcat]

Blue_Knight wrote: Thank you for remembering my little girl. Right now, as I type, she is in surgery. I was thinking about you guys and came to the hospital library where they have computer access for patients and families.

Graciewas actually admitted yesterday for preparation.She has been so excited. She knows exactly what is going on. It was hard for her to sleep last night for being anxious, excited, etc. I was impressed that she didn't even cry when they gave her the IV. I 'm sometimes in awe of her courage. The only time she cried was when they took her into the surgery room and Mom and Dad couldn't go with her. One of the team members came back out and told us that by the time they were in the room, she was smiling and winning hearts again.

I will write more later on.
Thankyou for remembering us, too, on this important day. We're waiting along with your family. Sendingthe best your way.

[bleedbluelady]

PsychoCat wrote: Gracie and your family are in our hearts and prayers today especially as shegoes through surgery :)
Amen. :)

[trublu]

One more here praying for Gracie and your family today. Please give us an update when you can. God bless you.

[Calsegs]

Gracie prayers have top priority today.

[WildcatDan]

I have been thinking about this all morning and have been to busy at work to get online to see what was going on... but I HAVE had time to pray for Gracie and your family!

[UKHAS7NCAA]

Wishing & praying the best for her during this day. Your a special mom and dad & you guys have been through alot. Keep us posted.

[KY Blue in Carolina]

I too, have been thinking and praying for Gracie today.

[Bluesong]

They just sent someone out to let us know everything is going great. She is doing wonderfulbut it will probably be another hour, maybe two. Stay tuned...

[Calsegs]

Thanks for letting us know, BK.

[PsychoCat]

Thanks for the update....I know it has been a long day for you and your family ..... but you are almost there :)...... continued thoughts and prayers are with you!

[KY Blue in Carolina]

We're right there with you BK.....

Hang in there and thanks for thinking of us with your updates.

[NC Cat]

Godspeed little Gracie!!!:thumbup:thumbup:thumbup

[Jeff Craddock]

I just spoke with Blue Knight, who asked me to post the most recent update. He had been posting from the library at Children's Hospital, but the library closed at 5 PM, so Bruce has no access to a computer.

Gracie came out of surgery at 6 PM and everyone was very pleased with how the surgery went. She was in surgery for 11 hours, so you can imagine that she's been through quite a procedure. She's currently in intensive care and will be so for the rest of the night. Doctors have told Blue Knight that progress will be very gradual, but they are looking forward to a good recovery. Blue Knight also noted that the people at Children's have been wonderful. (I can attest to this, as I've a lot of dealings with the hospital through the years and have friends who work there. It's a wonderful hospital.)

I think Blue Knight is experiencing a little culture shock, as well. He'll be here for at least a week or two, so we hope to get together and have a meal and swap a few lies....:thumbup

[capcat]

Thanks, Jeff...glad you are nearby andplan to spend some time together :cool:

[Calsegs]

It makes me happy to know that Jeff is available to be hospitable . Thanks for posting the update, Jeff . That all sounds very reassuring.
Prayers continue for Gracie and her family.

[zonetoncatfan]

Thanks Jeff for the update. Still keeping them all in our prayers. Hope for more good news tomorrow.

[wildcatfaninnc]

BK, we are praying and hoping your little angel recovers quickly. It appears you are in good hands with Jeff. Go get some rest and try to get some sleep.

[bleedbluelady]

Calsegs wrote: It makes me happy to know that Jeff is available to be hospitable . Thanks for posting the update, Jeff . That all sounds very reassuring.
Prayers continue for Gracie and her family.

Amen to all. Prayers continuing.

[PsychoCat]

Thank you Jeff for posting and bless you for being available to BK and his family. Gracie is in our thoughts andwe pray for a peaceful night

[WildcatGirl]

capcat wrote: Blue_Knight wrote: Thank you for remembering my little girl. Right now, as I type, she is in surgery. I was thinking about you guys and came to the hospital library where they have computer access for patients and families.

Graciewas actually admitted yesterday for preparation.She has been so excited. She knows exactly what is going on. It was hard for her to sleep last night for being anxious, excited, etc. I was impressed that she didn't even cry when they gave her the IV. I 'm sometimes in awe of her courage. The only time she cried was when they took her into the surgery room and Mom and Dad couldn't go with her. One of the team members came back out and told us that by the time they were in the room, she was smiling and winning hearts again.

I will write more later on.
Thankyou for remembering us, too, on this important day. We're waiting along with your family. Sendingthe best your way.
I second Judy's sentiments Bruce. Thank you for keeping your 2nd family informed today. I know that this will be a long few days for you please retreat to the comfort of your caring WCN family anytime you need to!

[WildcatDan]

Glad to hear things went well! Hopefully you can all get some sleep tonight!

[SamKat]

I'm late in on this thread. I'm impressed by the little girl's courage and, even moreso, by these prayer s offered by WCN posters.

God, please continue blessing this little one and her loving family.

[Jeff Craddock]

I just spoke with Blue Knight again and he wants everyone on WCN to know how much he appreciates the prayers and support that have been sent to Gracie and her family. I could feel his joy over the phone, as things are going much better than expected. :thumbup

He has been told that her improvement will be gradual, over the next several weeks, but this morning she was able to lift her arm and bend it at the elbow, something that would have been impossible for her before the surgery. He also mentioned--and this may have been posted before--that Gracie is one of the youngest children to have gotten this procedure, as her condition was the result of an injury instead of congenital.

If there are further updates before Monday AM, Bruce will call me and I'll post them as soon as I'm near a computer.

[capcat]

Jeff Craddock wrote:
He has been told that her improvement will be gradual, over the next several weeks, but this morning she was able to lift her arm and bend it at the elbow, something that would have been impossible for her before the surgery.
Wonderful news. Gracie, you're a champion. We're pulling for you. :cool:

[Calsegs]

Thank you, Jeffrey.
Gracie , we're all in your corner, darling.

[WildcatGirl]

Fantastic news Jeff, thanks for sharing. I am so excited for Gracie and her entire family...Bruce you and your family are in my prayers!

[KY Blue in Carolina]

Wonderful news indeed. Thoughts and prayers continue...

[bleedbluelady]

Calsegs wrote: Thank you, Jeffrey.
Gracie , we're all in your corner, darling.

:thumbup

[bigjeep]

bleedbluelady wrote: Calsegs wrote: Thank you, Jeffrey.
Gracie , we're all in your corner, darling.

:thumbup


andonce again if I may...:thumbup

[Jeff Craddock]

Got a message from Blue Knight this afternoon.

He wants everyone from WCN who sent the balloons to know that Gracie loves them. :) He continues to be awed by the support Gracie and the family are getting from all of you here.

She will be in the hospital for another day or two and is still in considerable pain. The doctors are saying that it will be from two weeks to two months before we will see a whole lot of difference in Gracie's motor functioning, but they remain very optimistic.

Bruce said that he will call with another update later today or early tomorrow. (He'll probably be back on the Children's Hospital computers by then, so you may get the next update from the source.)

[Calsegs]

That is a solidly good report. Thanks, Jeff, for giving us some Gracie news.
Prayers for best possible healing/result continue.

[HOMEYCAT]

May the Gracie of God be upon us all....:thumbup

[CATHYnKY]

YOU GO GIRL! I'm pulling for ya Gracie. And my thoughts are with her parents too :)

[capcat]

I'm sorry she's in pain. Hope that gets better soon. We're thinking about you, Gracie :thumbup

[WildcatGirl]

Sorry to hear that she is in pain and I hope that improves quickly...but very glad that she is doing so well. ((((HUGS)))) to Gracie (and the rest of the family)

[zonetoncatfan]

Lots of love and hugs to our little Wildcat girl! xoxo

[trublu]

Hang in there Gracie. There are lots of people rooting for you.

[Bluesong]

Hello everyone! It looks like we get to leave the hospital today. YAY!! Gracie has been sitting in her chair for the last couple hours. Not once has she arched or twisted.We arenot sure if it's because she's tired or we are getting early results. I choose to believe the best. Julie and Iare bothnoticing small, subtle differences and have high hopes that they are a sign of things to come.

I told her I was coming down to write to you guys. Her eyes lit up, backed with that smile of hers. I know she can't wait for me to read her, all your posts and responses.

Jeff is right. Gracie's procedure was documented, complete with photos because of how rare her condition is. She wasn't born with it. It was caused by an injury inflicted bythe fluvirus. They are looking to offer hope for others with similar circumstances.

I can't say enough about Dr. Lavine and his medical team. The best in the nation as far as I'm concerned. The main reason the surgery took so long was because of how picky he is and wanted to make sureeverything was precise. One ml. could be the difference in success or failure. He treated my daughter like his own andis greatly respected by all in the medical field.

I will keep you all updated as she continues to recover.

Ok Jeff. It's time for us to hook up. Anyone care to join us? :)

[NC Cat]

:thumbupBK, that's some of the best news I've heard in a long, longtime! Can't wait to see some pictures of thatfamous Gracie smile.

Gracie, you go girl! We're all pulling for you!

[HOMEYCAT]

And when you're smiling the whole board smiles with you.....:D

[KY Blue in Carolina]

Your second familiy is indeed united in prayer and support. Thanks again for keeping us in the loop. I can't wait to hear about Gracie's progress, and hope to meet the young lady someday.

Make sure Mom & Dad get some rest and recuperation, as well. I'm sure y'all are worn slam out.

[WildcatDan]

Whoo hoo! Just being in a hospital can drain the energy right out of you so I am glad to hear that you guys will get to get out of there! Glad to hear Gracie is doing so well! I continue to pray for you all!

[Calsegs]

Wonderful news, BlueKnight.
I choose to interpret the soft signs as indicative of significant change ahead.

Wow, what a story, and to think it IS your lives.

We are all waiting and hoping with you, for the best possible result.
Gracie , you're a brave girl and a beautiful person. :cool:

[bleedbluelady]

Calsegs wrote: Wonderful news, BlueKnight.
I choose to interpret the soft signs as indicative of significant change ahead.

Wow, what a story, and to think it IS your lives.

We are all waiting and hoping with you, for the best possible result.
Gracie , you're a brave girl and a beautiful person. :cool:

:thumbup:)

[capcat]

Blue_Knight wrote: I told her I was coming down to write to you guys. Her eyes lit up, backed with that smile of hers. I know she can't wait for me to read her, all your posts and responses.

Good to hear that :) Thanks for sharing the latest with us...I'm hopeful for those subtle signs you are noticing :cool:

[zonetoncatfan]

Just echoing all the previous sentiments. Gracie dear, you are a miracle. Every day, there are reasons to question why and become downtroden with the sadness that life can bring. Thank you for being a beacon for us and for letting your 'little light' shine. xoxo from us all here at WCN! :D

[Jeff Craddock]

Blue Knight, I'm so happy for Gracie and your family! I can't add a thing to what has been said above. And I'm really pleased that you can deliver the good news directly, as sometimes things get lost in translation. I've seen the doctors at Children's Hospital do amazing things, so Gracie is truly blessed to be getting such wonderful treatment.

I'll call you tomorrow after work and we'll take it from there. But please be very careful for the next couple of days. 100+ temps in DC can be absolutely brutal, so don't push too hard.

[fanaticfan]

Bruce,

I have watched this board everyday looking for the updates on Gracie. I worried right with you all day on the day of her surgery. I also knew in my heart that this will be a wonderful thing for Gracie. I am sure that the missing arching of her back is due to her surgery and you will see subtle improvements. I pray that her pain goes away. She is truly an inspiration. You will continue to be in my prayers.

[Jeff Craddock]

Here's another update. Just had a long conversation with Bruce and the news is very good. Gracie left the hospital yesterday and is doing better than fine--no stretching or twisting since Sunday and her pain has abated.

In fact, Mr. and Mrs. Blue Knight took their son and Gracie to the Smithsonian--Museum of Natural History--and were out for a couple of hours, including short stints in the unbelievable heat. Luckily, they rode an AC'd bus from the hotel to the AC'd Smithsonian. Bruce says he believes in giving Gracie all the experiences possible and says that she had a great time. They are thinking about going up to Baltimore and spending some time at the Inner Harbor and the aquarium there. Gracie continues to smile more and more, so you can imagine how good her family must feel.

She has an appointment to see the docs at Children's on Thursday, when they will give Bruce a better feeling about how long they'll have to stay here. (I'm getting the feeling that the family would love to be back in Franklin, out of the sometimes chaotic energy of DC.) We're hoping to find a way to get together this weekend.

They are alread looking into rehab centers, as Gracie has lots of catching up to do. She will have to spend fairly extended periods of time in rehab, so she has her work cut out.

On a personal note, I've got to say that I am getting a lot out of this--each time I talk to Bruce, I have to smooth the huge goosebumps on my arms. There is something very special happening here. We had a fun conversation tonight, straying at times from Gracie to our mutual love of music, cars, and general good humor. (Calsegs, Bruce's oldest son also plays in a rock band. :thumbup)

More next time I hear from Bruce...

[Calsegs]

Jeff, just as you mentioned smoothing the goosebumps on your arms , I realized my legs and arms were very , very bumpy.
This is all overwhelming.
I am SO happy to hear a most favorable situation.
Gracie will tear it up in rehab.

Thanks again Jeffrey , for posting the Gracie news. I smile to hear more about her rocker bro.:cool:

Non-stop prayers for Gracie et al.

[zonetoncatfan]

More happy tears here! This news is just wonderful. I just had a thought, wouldn't it be cool to see Gracie walk out on to the Rupp Arena floor and be the 'Y' at a home game? I hope she's able to do more than walk.....run, dance, sing, hug, and everything else a sweet little girl ought to do. Can't wait for the next update on our girl!! :)

[capcat]

zonetoncatfan wrote: I just had a thought, wouldn't it be cool to see Gracie walk out on to the Rupp Arena floor and be the 'Y' at a home game?
I've been thinking the same thing, zoneton. Regardless, I am so pleased with the reports. Gracie, glad you got to go to the Smithsonian. You are one strong girl. :cool:

[HOMEYCAT]

Excellent.......

I feel like a cheer leader. Super cool!

:cool:

[WildcatGirl]

I'm loving the great news! Way to go Gracie!!!!:thumbup:thumbup

[WildcatDan]

Bruce,

I hope you don't mind but I wanted to bring up the first post from this thread to remind everyone how far you all have come and where it all started. Lots of prayers have come your way and I am convinced this is the answer to those prayers. God Bless Gracie and your whole family!

Blue_Knight wrote:
I know this is mainly a UK sports forum and therefore, have hesitated in making this request. But I also see this as a gathering place of friends who care and are always willing to pray or offer encouraging words if one develops a need. I guess it’s now my turn to call on you.



I have a beautiful 6 year old daughter. She was born perfect, never sick a day in her life until 11 months old when she got the flu. What was different with her was the virus got into her spinal fluid and worked it's way into her brain causing a swelling called encephalitus. Basically, it choked off the nerves that control her physical motor skills. That led to a movement disorder called Dystonia. It left her completely incapacitated. She can't talk, walk, play, hold a toy, she can't even eat. We have to feed her through a feeding tube surgically placed into her abdomen. She has some movements but they are mostly involuntary. Her brain misfires rapidly causing her to stiffen up or arch backward. Sometimes to the point of pain.



Her mind is still there. She’s right where she is suppose to be for her age. She has been tested using cue cards. She has a million dollar smile and uses expressions to communicate. She’s just locked in a body thatnolongerworks.



I haven’t been online much lately because we are currently in Vanderbilt Children’s Hospital in Nashville where she is fighting for her life due to an onset of pneumonia. She has actually stopped breathing twice. It’s been rough but she is showing signs of improvement.



Here’s the good news:



The FDA has approved a medical technique called “Deep Brain Stimulation”. They can actually put sensors in the brain to help it fire the electrical impulses the way it is suppose to. The youngest you can be is 7 years old because of certain brain developments. She will be 7 in February and we will soon be going to Washington for the procedure.



We have actually talked to the doctors doing the surgery. They are having wonderful and dramatic results with ALL patients undergoing the treatment. We were told of a little boy who had dystonia so bad that the only way he could get any type of relief was to lay on his stomach in a fetal position with his butt in the air…..Now he can ride a bicycle. Needless to say, we are excited.


For you, as my friends, I want you to be thankful. Not just for medical achievements but for life and health. If you can go home and have your kids run to you; embrace them. If you can sit down to a meal together, listen to them with your heart. If you can hear them say “I Love You”, cherish that moment. And when you pray, please….remember my little girl.

This is Gracie and me two weeks before she got sick 6 years ago:
http://www.horsethieves.net/drifter/gracie2.jpg?SSImageQuality=Full

[CATHYnKY]

TERRIFIC!!!!! GO GRACIE!!!!

[NC Cat]

Wow!How terrific is that?!? Thanks so much for the update Jeff, you made my day! I remember how special it was to takeour girls to the Smithsonian, and I can only imagine how blessed Bruce must feel by being able to take Gracie.Something very special isgoing on here and it couldn't happen to a more deservingfamily.:thumbup

[Jeff Craddock]

More from Bruce. The appointment went very well. Gracie continues to exceed expectations, so much so that the docs have released her to go back home. So the family will catch a plane for Franklin tomorrow. Gracie is beginning to stiffen again, but Bruce said that the docs expected that, that it's part of the healing. It will be temporary, but she will like return to the baseline that existed before the surgery. I told Bruce I'd let him fill in the details, because he knows the particulars and can describe more how the healing is supposed to work. But the family is very pleased.

They went to Baltimore today, toured the Inner Harbor, and went to the aquarium. They had a terrific time. Bruce was quite taken with the crabcakes--Maryland makes the best!:cool:--and the crab. Glad he got to get up there.) Despite the searing heat, the breezes off the water kept them reasonably cool.

The bad news--for me--is that I won't get to meet Gracie and the family this time. But they are coming back in six weeks, the weather will be better....so who knows, maybe a cookout?

We were saying our goodbyes when a huge thunderstorm--a blessed harbinger of the exit of this heat wave--and we were cut off when he lost his cell. He will undoubtedly have much to say tomorrow or the next day.

But for now, things look very good. :thumbup

[Calsegs]

Wow, thanks Jeff.

Getting to go home less than a week later has to be encouraging.
I really admire a family that can combine 11 hours of surgery with sightseeing and crab cakes.
Safe journey home, Gracie et al.

I will keep you an, your family and your medical team in my prayers until further notice...:D

[capcat]

Jeff Craddock wrote: Gracie is beginning to stiffen again, but Bruce said that the docs expected that, that it's part of the healing. It will be temporary, but she will like return to the baseline that existed before the surgery. I told Bruce I'd let him fill in the details, because he knows the particulars and can describe more how the healing is supposed to work.
Will be very interested in hearing more about that.

[Bluesong]

Hello Everyone! It is great to be back home. After reading all of your posts, we all had to dry our eyes out. Including Gracie. You all are so important to her. She has been strengthened by your prayers, blessed with your love, and encouraged by your hope.

We've had quite an experience in DC. I agree that there is truly something special going on here. I have personally witnessed what I believe to be a higher power at work. There were so many things that took place in order for this trip to happen, I couldeasily write a small book about it. There were times it would have been easy to look at the circumstances and doubt it would happen. If just one piece of the puzzle had been missing, it wouldn't have. I guess I'm still learning, even at my age,that success is not a destination, it's a journey. Always have faith and stay the course.

The first few days after the surgery were incredible. No sign of dystonia. She was free from the twisting and arching. She was already working one of her arms by bending it at the elbow. She could look in any direction she wanted to.Doctor Lavinetold us that it was a great sign but that she would return back to her base line and improve from there.He was very optimistic that Gracie would takebetween 6 and 8 weeks. We were toldthat some took as long as 6 months to a year.

When it started coming back, she cried. We had to explain it all to her in an excited way and you could see that hope start taking the placeof tears. She did regress some but thankfully, she hasn't returned to the way she was. I went home for lunch today and she was on the couch watching Mr. Rogers. I could see her from the kitchen table and she looked up at me and smiled. I stuck my hand up and waved my fingers at her. Instantly, her little hand went up and waved back. Well....down here in southern Kentucky, we did a little thing that we like to call, " 'Hooping and Hollering." YEEE HAAW!! THAT'S MY GIRL!

Once the dystonia is in check, Gracie will undergo intense therapy. She still has to overcome the initial damage. She is such a fighter. I'm posting some pictures and you can see her still trying to work that arm. Who knows, maybe some day she will be designing graphics just like Dad.

http://www.horsethieves.net/drifter/gracieindc01.jpg

http://www.horsethieves.net/drifter/gracieindc02.jpg

If you would like to see more pictures of her trip and other fun times, you can go to this site: http://bpowell9.photosite.com/GracieinDC/ (http://bpowell9.photosite.com/GracieinDC/) It starts by looking out her window in the hospital and you can see Capitol Hill. Just above that picture, click on "View Slideshow."

Before I close, I want to send a special thanks to Jeff Craddock. For the calls and local support. Jeff is one cool dude and I hope to take him up on that cookout.

[WildcatGirl]

Fantastic news Bruce. I'm so happpy for Gracie and your entire family that she is doing well. I am sending up both prayers of Thanksgiving and additional prayers for continued healing.

WAY TO GO GRACIE!!! You are awesome girl!

[BigBlueAngus]

Wait a minute, I've always been a big fan of Gracie...Actually shes kind of my hero. But if she's wearing an AC/DC shirt in that picture, Man O Man...You go Gracie! Thats even more awesome...er most awesome...Nah AWESOMEREST! :? Yeah that it.

Gracie you are the most AWESOMEREST young lady I Know.

[bleedbluelady]

Thank you so much Bruce for the update. Words aren't adequate to tell Gracie and your family how much I admire your loving, courageous, optimistic spirit. I am smiling through tears of joy. :)

[Calsegs]

What Gillia said!

Tears of joy!

This news has made my day. The photos of Gracie and her family are beautiful.
I totally believe what Bruce has expressed about being part of a wondrous work .

Thanks for posting BlueKnight, you guys are in my prayers perpetually.

[Jeff Craddock]

Wonderful pics, Bruce! Gracie is so beautiful. :thumbup

It was more than my pleasure to talk with you and convey the news about Gracie to WCN. Look forward to seeing you in a few weeks. Love to Gracie and your family.

[zonetoncatfan]

We've anxiously awaited this update and it's even better than expected--with pictures of our girl to boot!!! Can't wait to hear more about Gracie's recovery and her steps to healing. I can only thank God that your story is a happy one. Keep it up Gracie Girl!! xoxo

P.S. Love the picture of you holding Gracie on the plane...she's Daddy's Girl, right?

[PsychoCat]

Great pics Bruce :D Gracie isan amazing little girl andhas captured our hearts with her smile, her stength and courage and we are blessed for being able to share in her journey. We are pulling for her everyday as we keepyou and your family in our thoughts and prayers!

[capcat]

Thank you for the update and the photos, Bruce. She appears to be going through a growth spurt...what a beautiful girl she is and more so every day.Looks like a private plane/jet...is that from the sameindividualwho arranged for transportation on earlier trips? It's really something to see everything come together for Gracie and your family. You're blessed, and there's a reason for that. Thanks for allowing us to follow Gracie's story.

[KY Blue in Carolina]

Great news indeed, Bruce!

Let Gracie know we're with her all the way!

[WildcatDan]

Bruce,

The story about Gracie waving to you brought tears to my eyes! Glad to hear you guys are doing so well and I enjoyed the photos!

[trublu]

Gracie, you are beautiful. And, you are so courageous that it makes me want to be a better person, and to believe that I can do anything.
Thank You!